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It was ....

ObiWanCannoli's picture
on June 24, 2009 - 11:44am

Ten years ago today … I had a baby boy. My now ex-husband and I had his name picked out for months before he was born … it was the tradition in his family to have the boys have their initials be DAM – I don’t know why but being married to my now ex gave me a good idea. Anyway … baby boy was going to have a good, strong, upstanding Scottish name so he was to be Duncan Alistair. I went into labor the night before but still hadn’t delivered by 7AM. One doctor left and another had just started when he said that he was going to check my cervix and if I hadn’t dilated anymore than previous he was going to send me home. “The hell you are!” I exclaimed being as I lived an hour away from the hospital. During the examination this fair-haired doctor suddenly turned whiter than he already was. I could see him swallow; his Adam’s apple bobbing in his throat, his eyes opening wide. “What?” I said suddenly breaking out in a sweat. “I’ve got the … cord … in my hand.” Came his response. Then he began calling for the nurse but none came. My ex is a paramedic so he instructed my ex to get something from a drawer then call the nurse. It went pretty fast after that … he told me I had to have emergency surgery and that he was very sorry but he couldn’t remove his hand or there was a good chance the baby would die. As we rode together on the same gurney, him with his hand still in my … for lack of a better word … crotch I said to him; "you probably should have taken me out to dinner first." That got a laugh out of him. When we arrived at the surgery the anesthesiologist apologized as well … “I’m very sorry.” He said. “You won’t be awake to see the baby born. We just don’t have time.” “It’s okay” I said. “I’ll see him later!” Well when I woke there was no baby to be found and I sat up painfully and inquired as to where my baby was. Darrin came to sit by me and said, “I have to tell you something about the baby.” I was instantly flooded with panic and asked what I didn’t want to know the answer to … “No he’s just in the NICU.” Why was he in the Neonatal Intensive Care Unit? He was born with these … things … anomalies … lumps … they had no idea what it was and so they put him there to isolate him to find out what was wrong with him. Darrin showed me Polaroids of him and sure enough he was a bit deformed. “I want to see my baby.” I said adamantly and called the nurse. She said they couldn’t bring him to me so I got out of bed and went to him. My precious little Duncan had tubes in his nose and an I.V. in his foot. They wouldn’t let me breastfeed him; they didn’t want to introduce any “foreign” fluids into him before they knew what was wrong … he was examined by every specialty they could find and he’d even had a 2 dimensional echocardiogram to be sure his heart was all right. Yep, he was fine internally it was just externally that he wasn’t. They brought in two genetecists who interviewed both Darrin and I and then after some time they said it was either Proteus Syndrome or Klippel-Trenaunay Weber Syndrome. A dermatologist from Children’s Memorial Hospital in Chicago was called and after examining Duncan she said “It’s definitely Proteus.” She had treated a Proteus patient in the past and identified it right away. Well we had a name for it at least. After bringing our little man home I did what research I could on Proteus Syndrome even joining the Proteus Foundation – Duncan was in an elite group of maybe 300 Proteus people in the entire world! Then I started to find out things I really didn’t want to know … like his life expectancy … tumors grow all over his body and could grow on and in his internal organs causing death. I shut it down … I never went back to the site and still won’t but I will have him get an MRI every year to make sure nothing is growing inside that shouldn’t be there. I’ll be honest with you – I didn’t think Duncan would make it to see his 10th birthday … I’ve always been protective of him, kept him under my wing and probably always will. So if you’ve ever wanted to know why baby boy means so much to me – well now you do! He’s my little Scottish miracle child and he always will be. HAPPY BIRTHDAY BABY BOY! And many more ….

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