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A tiny ray of hope

pearcenalaska's picture
on November 13, 2009 - 10:15pm

I have been making plans to get to Indiana to spend time with my Dad. My husband has been such a rock and so kind and compassionate but he is in all aspects. He is making it so I can go for 3 weeks. I talked to my step-mom for a good while tonight and was able to ask more questions and they know a little bit more. He is on less oxygen (75%) they don't figure he'll ever be totally off it. He has pulmonary disease by way of fibrosis and the disease is rapidly progressive. We don't know why, it just is. He was moved out of ICU and into a regular room with a phone, so now I can talk to him. He will be in the hospital for awhile yet. They are trying to get him transferred to the hospital where my step-mom works, closer to their home. He may still be in the hospital when I get there in a little over a week. There has been talk of a lung transplant but my Dad is in no way able to do that at this time, even if it was available. He is just to weak and they said he would never survive the surgery. That is something to think about if and when he improves. He is able to do small things like shave, brush his teeth and use the toilet by his bed. That is a major improvement over Monday, where they said he had about 3 hrs to live if things didn't change. They don't have a lot to work with but it is better than before. A wonderful Grobie friend (thanks Violet) suggested the Cleveland Pulmonary Clinic and I mentioned it to my step-mom so we are going to look into it. I am just anxious to be there and see for myself. I jokingly told my step-mom that I would have to hold my Dad's hand for a couple days to be sure that he was going to be okay :D He might get annoyed after a few days :P LOL! It is going to be strange seeing my Dad in this situation because he is such a strong willed, opinionated man. He is one tough dude! Just makes me appreciate what I have and not take it for granted. I am so grateful for all my wonderful Grobie friends who have offered encouragement, love and prayers. I thank God constantly for bringing Josh and all the wonderful Grobanites into my life.

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